Saturday, October 31, 2009
1. The illness I live with is: I don't know. Lyme & co-infections.
2. I was diagnosed with it in the year: 2009
3. But I had symptoms since: 1985
4. The biggest adjustment I’ve had to make is: being constantly brittle
5. Most people assume: I am fine.
6. The hardest part about mornings are: Every day is difficult
7. My favorite medical TV show is: Can't watch them.
8. A gadget I couldn’t live without is: My computer
9. The hardest part about nights are: Trying to sleep without constant waves of fright
10. Each day I take a lot of pills & vitamins 44/day.
11. Regarding alternative treatments I: am not there yet.
12. If I had to choose between an invisible illness or visible I would choose: Visible by all means. A permanently broken leg would feel much better.
13. Regarding working and career: What's that?
14. People would be surprised to know: ???
15. The hardest thing to accept about my new reality has been: Staying alone and quiet
16. Something I never thought I could do with my illness that I did was: Not there yet.
17. The commercials about my illness: What commercials?
18. Something I really miss doing since I was diagnosed is: Socializing, politics, walking.
19. It was really hard to have to give up: Politics
20. A new hobby I have taken up since my diagnosis is: Facebook
21. If I could have one day of feeling normal again I would: Run.
22. My illness has taught me: to be sad, very sad.
23. Want to know a secret? One thing people say that gets under my skin is: ??
24. But I love it when people: understand and let me talk.
25. My favorite motto, scripture, quote that gets me through tough times is: it will get better.
26. When someone is diagnosed I’d like to tell them: Oh, God!
27. Something that has surprised me about living with an illness is: how resilient I really am.
28. The nicest thing someone did for me when I wasn’t feeling well was: cook.
29. I’m involved with Invisible Illness Week because: ??
30. The fact that you read this list makes me feel: understood.
I wish you would watch "Under Our Skin." I have three copies of it and will lend them.
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